[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by amy on 2/20/2007, 6:13 pm, in reply to "mosaic trisomy 22" --Previous Message--
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My son was diagnosed with something post natal but, they didn't know what it was..He is now 6 months old, we are going through all kinds of trial, he has 1 kidney that is placed in his pelvic, a deformed ear, eyes we are not sure about..and a heart disorder, and some genitalia deformaties..we arejust addressing one thing at a time. He is not growing the way the dr.s want so we may be looking at a feeding tube..he only weighs 6lbs 4 oz. he is 19 1/2 inches long. and 6mnths old. I was hoping if there is anyone out there that could give me info on how there child grew and hoe fast. my son has extra copy of the 22. I would love to have names and #;s of any dr.s thar have treated your babies so that my dr can learn from them. any info would be greatly appreciated..thanks sad but hopeful.
: I am 21 weeks pregnant and just got a
: dianosis of Mosaic trisomy 22 for my
: unborn son. Is there anyone out there
: that got there dianosis prenatally, or
: any abnormalities picked up via
: sonograms during your pregnancy?
:
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