[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by T on 9/23/2006, 11:55 pm, in reply to "Re: Full/Complete Trisomy 22 - lost her 2 weeks ago" thanks for your nice story...but your nephew's baby girl must not have had COMPLETE or FULL Trisomy 22 but mosaic Trisomy 22. There have only been 2 documented cases of FULL or COMPLETE Triosmy 22 babies making it past a few hours after delivery. Our baby was a FULL or COMPLETE Trisomy 22 in which all her cells were Trisomy 22 and she had many fatal abnormalities. We lost her 10 days ago at 18 weeks gestation.
72.67.43.231
melinda,
--Previous Message--
: Hi H.,
:
: My husband and I were just diagnosed
: today...with full Trisomy 22. I have
: not lost our baby girl yet but they
: tell me it is imminent. It's
: hard...my doctor had never seen a case
: of this last this long and the lab
: that did our result hasn't either.
: I'm 15 going on 16 weeks pregnant.
:
: What is your story? I'd love to
: correspond as I'm a little scared and
: not much info on this.
:
: Thanks, T
:
: --Previous Message--
: My daughter was diagnosed with Full
: Trisomy 22 and we lost her two weeks
: ago. I am interested in corresponding
: with anyone who has received the same
: diagnosis and went through this or is
: going through this and might want to
: talk. I keep hearing how rare it is
: and there is not enough information on
: it. Please send me your email and I
: will email you directly.
: Thanks, h.
:
:
:
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