[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by melinda on 9/23/2006, 11:39 pm, in reply to "Re: Full/Complete Trisomy 22 - lost her 2 weeks ago" --Previous Message--
63.228.54.243
five years ago my nephew was diagnosed the same with trisomy 22. They said there was a 1 in a billion chance of survival or she would have multiple disabilities. After many prayers, she started kindergarten 2 weeks ago and she is even reading already. Our experience may be an exception but at the time they said it was so rare there was almost no information on it. -thanks
: Hi H.,
:
: My husband and I were just diagnosed
: today...with full Trisomy 22. I have
: not lost our baby girl yet but they
: tell me it is imminent. It's
: hard...my doctor had never seen a case
: of this last this long and the lab
: that did our result hasn't either.
: I'm 15 going on 16 weeks pregnant.
:
: What is your story? I'd love to
: correspond as I'm a little scared and
: not much info on this.
:
: Thanks, T
:
: --Previous Message--
: My daughter was diagnosed with Full
: Trisomy 22 and we lost her two weeks
: ago. I am interested in corresponding
: with anyone who has received the same
: diagnosis and went through this or is
: going through this and might want to
: talk. I keep hearing how rare it is
: and there is not enough information on
: it. Please send me your email and I
: will email you directly.
: Thanks, h.
:
:
:
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