
Posted by john schwind on 8/23/2006, 4:17 pm, in reply to "Re: Full/Complete Trisomy 22 - lost her 2 weeks ago" --Previous Message--
204.88.250.240
Sorry to hear of the loss of a child. You mentioned you were expecting a trisomy 22 child. We have a 6 year old mosiac trisomy 22 girl. She does great, reads at a third grade level. Various physical/ medical issues. An angel. There is not a lot of info out there. You may call us at 805 473- 2558.
: I am 7 months pregnant with a trisomy 22
: baby. I would like to know more about
: your situation. How long she lived
: after birth; did you medically
: intervene with surgeries, etc.
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: --Previous Message--
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: --Previous Message--
: My daughter was diagnosed with Full
: Trisomy 22 and we lost her two weeks
: ago. I am interested in corresponding
: with anyone who has received the same
: diagnosis and went through this or is
: going through this and might want to
: talk. I keep hearing how rare it is
: and there is not enough information on
: it. Please send me your email and I
: will email you directly.
: Thanks, h.
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Visit our home page, http://www.nt.net/~a815/chr22.htm