[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by mechille burke --Previous Message-- John Mechille
on 2/21/2006, 1:58 pm, in reply to "Trisomy 22 girl, 6, doing great"
66.115.96.112
: Like many who post to this site, we
: struggled to find information about
: Trisomy 22 when our daughter was born
: with it. Mostly, we wanted to know if
: there was hope for her to survive,
: then to thrive, and ideally enjoy
: life. Although we have had our share
: of trials, our hearts go out to those
: who have endured much greater health
: challenges than we. Our girl will be
: 6 in a few weeks. She is still only
: 32 pounds, and has been for the last
: 2-3 years. She had three surgeries in
: the last year. However, she is
: developmentally equivalent to 'normal'
: now, and she even reads at a third
: grade level. She can write and spell
: her own 20- 30 word stories. She is
: more than 2 inches shorter on one side
: than the other, but she walks and runs
: around. Many hours of prayers by
: people around the world have helped.
: We understand that some health care
: professionals question the abilities
: of our trisomy 22 children, and even
: adjust their care based on what they
: believe to be 'worth it'. This is
: usually due to the lack of
: information. For those of you in such
: a situation, please take this case as
: evidence that there is no cause to
: limit care. Her life, like those of
: all the trisomy 22 kids we are
: familiar with, is an amazing thing to
: behold and a priviledge to be part of.
: With love and prayers to all the
: Trisomy 22 families, The Schwinds
:
It is Great to hear this fantastic news. Glad to hear your little angel is doing so well.
God Bless You
Mom to Jared (22q12.1 duplication), Amanda 14 and Jenna 10
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