[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Brad's Mom I just want to encourage parents to hang in there. Help your child get treatment for the problems that are treatable and teach them how to be the most they can be despite the ones that can't be changed. Especially in his first 5-6 years, we went from specialist to specialist - all sorts of surgeries and therapy. Then we got to the place we realized he's ours and we love him no matter what. Life became a lot more sane after that point. We still made sure he got all he needed but no longer obsessed in a search for the miracle "cure". Brad's a sweetheart. He graduated from high school with an occupational diploma and now works at a sheltered workshop. He has areas where he still struggles, yet also has areas where he amazes you with his intelligence and insight. Anyone who knows him will tell you he's a great young man. If I can help anyone struggling with issues of parenting their very special child, please contact me. I am also a career social worker so know the system from many different angles.
on 1/19/2006, 5:28 pm
204.211.80.15
My son is now 20 years old. As an infant and toddler, he presented a number of atypical conditions that defied classification for a long time. Ultimately he was diagnosed with DiGeorge Syndrome/velocardiofacial syndrome. In dealing with this over the years, one thing I've learned is that children with these conditions have a wide variety of symptoms and needs. Nothing seems standard - all are different.
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