[ Post a Response | Trisomy 22 and Misc. 22 Interest Board ]
Posted by Chrisitne on 11/19/2005, 3:21 pm, in reply to "Re: Full Trisomy 22 Live Birth" --Previous Message--
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I have a cousin who is now 23 yrs old and is living with trisomy 22. He has exceeded all expectations of the doctors and no one really knows now how long he will live. He is a happy, healthy young man that carries a mail delivery job. There is hope for your daughter.
: i had a baby girl born with full trisomy
: 22 and she only lived 1 hour i have
: heard of children who have lived when
: i posted a message a women responded
: with this:
:
: From what I've read, your doctor is
: right about your child's prognosis.
: However, some trisomy 22 children have
: survived, so it's not entirely
: impossible that your child might live.
: One report of two trisomy 22 girls
: aged 6 and 8 is available here:
: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=568044&dopt=Abstract
: I suggest you contact the support
: organisation for trisomy 18, 13 and
: similar conditions, who's website is
: http://www.trisomy.org/ . They are a
: support group for parents of babies
: with deadly chromosome disorders. I am
: sure this is a hard time for you, and
: since I have no idea what it's like to
: be in your situation, the best I can
: do is help you find people who
: understand
:
: here is the website again hope this
: helped.
:
:
: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=568044&dopt=Abstract
:
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