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spiriva every other day

Posted by charlotte on 10/9/2014, 8:03 pm

I think it was Starion that posted once about taking Spiriva
every other day. I tried it awhile and don't remember much difference, but Tuesday and Wednesday i felt unusually short of breath in the afternoon. Today I skipped the spiriva and felt so much better! Went to a movie and stpped for dinner and then still felt well enough to go shopping at Marshalls. Lately by that time of day I am so tired and SOB. By the way, i use the Tiova generic from ADC. Any comments from anyone?

Re: spiriva every other day

Posted by john on 1/3/2021, 4:50 am, in reply to "spiriva every other day"

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Re: spiriva every other day

Posted by judi on 10/10/2014, 3:37 pm, in reply to "spiriva every other day"

Yes, it was Starion. I don't take it as prescribed either, I would like to take it a little more often but right now am only using it every 4 or 5 days, I don't know how much benefit I get after a couple of days or so.

According to the literature the duration of action is 'at least 24 hours', it is supposed to work that long. It lists the terminal half life at 5-6 days, that is the length of time it takes for the drug to be reduced by 1/2 in your blood plasma. I may not understand it totally but I think that's why some of us have problems, it just builds up too much when we take it every day.

I get SOB sometimes from it too if I take too much and it seems to freeze up my respiratory muscles or airways so I can't breathe as well. I am not sure if my BP med is playing a role in that though.

judi

Re: spiriva every other day

Posted by Rosie on 11/24/2020, 10:18 pm, in reply to "Re: spiriva every other day"

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Re: spiriva every other day

Posted by ElizabethFL on 10/10/2014, 2:05 pm, in reply to "spiriva every other day"

I have been using Spriva and Foradil (I use no steroids) for years. My pulmonologist just gave me a sample of Anoro Elipta and I think I am doing better on this medication I don't mean it is a miracle, just that I seem to be breathing a little better. (or maybe it is because the humidity is down/it has stopped raining/ or I am just having a good couple of days!) I have only been using it for three days, but it might be something you might want to try

Re: spiriva every other day

Posted by Bo on 10/10/2014, 12:09 am, in reply to "spiriva every other day"

You should use the Spiriva in the way that makes you breathe the best. If you do better on every other day that's what you should do. The med is only used to help us breathe.

Re: spiriva every other day

Posted by Starion on 10/10/2014, 8:15 pm, in reply to "Re: spiriva every other day"

Yes, I take Spiriva MWF, as it seems to give me sufficient benefits in improved breathing while reducing the side effects (VERY dry eyes and high heart rate).

Have been taking it MWF for several years now and it seems to work well as a compromise do me.

Work with doc

Posted by Starion on 10/10/2014, 8:17 pm, in reply to "Re: spiriva every other day"

If you want him or her to help you if you have problems, please work closely with him or her before and while you jointly agree to experiment with dosing.

Re: Work with doc

Posted by judi on 10/10/2014, 10:11 pm, in reply to "Work with doc"

I agree try to work with your doctor. I did however try to work with mine for a long time and he just sat and looked at me.

judi

Re: Work with doc

Posted by Jean on 10/11/2014, 9:37 am, in reply to "Re: Work with doc"

That's the point that I would have found a new one. I moved five years ago and needed to find a new pulmonologist. I actually interviewed them on my first visit, which I made, making sure they new I was a new patient. I was looking for someone who was young (so they'd be around and practicing when I'm 90), someone who was willing to accept information from me regarding COPD, research, new meds, etc. and someone who was willing for me to be an active partner in the care and management of my chronic condition. I got lucky and the first guy I interviewed became my doc. It's taken us a while to get really comfortable with each other, but we have a great relationship now, and I can ask him for help with a number of the advocacy things I do.

You don't have to settle for a doc who just looks at you and won't respond. You're responsible for your own care and you deserve to have a doc who pays attention to you, gives you credit for being intelligent and knowing yourself pretty well, and who will work with you as a partner. Your responsibility is to find that doc. I agree, they all ought to be that way; and we shouldn't have COPD. It is what it is and we need to take control of our own health. This is one way to do that.

Jean

Re: Work with doc--partner

Posted by Starion on 10/11/2014, 6:19 pm, in reply to "Re: Work with doc"

Agree with Jean that sometimes we need to find a new doc who WILL partner and consider doing things differently. I have fired 5 pulmonologists and 6 allergists while finding the ones who WILL partner with me. It is important to find someone who will work with you instead of just settling. It can take some doing, as fewer and fewer docs accept new patients and MediCare, but it's well worth exploring. I took a long time finding my docs but they're great!

Re: Work with doc--partner

Posted by judi on 10/12/2014, 11:30 am, in reply to "Re: Work with doc--partner"

I would have changed a long time ago but I would have an 80 mile drive to another town and I no longer keep a car. I could do it but feel I am better off staying with him so I will have a pulmo here if I am hospitalized. I have considered moving.

He isn't incompetent, just arrogant with an anger problem. When I was in the hospital one of the nurses told me the best thing about him was that he was almost old enough to retire. :-)
judi

Re: Work with doc--partner

Posted by Starion on 10/12/2014, 12:34 pm, in reply to "Re: Work with doc--partner"

Sorry there is no other pulmo in your area. Hope another one comes before he retires! It must be tough having an arrogant doc with an anger issue. I had a few of those--we clashed and I moved on.

One of my pulmos lives in Denver and I reach him mostly via email. I have physically seen him 5 times in 14 years and will be seeing him again a 6th time this May. My HI pulmo keeps in touch with me and him via email as well.

My HI pulmo is one of my only docs who is younger than I am and has an even younger associate. I have to find a younger internist one day--or I guess the pulmo could one day become my main doc. We get along well.

Hang in there!

Re: Work with doc--partner

Posted by judi on 10/13/2014, 6:28 pm, in reply to "Re: Work with doc--partner"

Thanks. I don't feel quite as bad as I used to because several other medical professionals have acknowledged there are issues with him so I don't take it as personally as I have in the past.

judi

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