[ Post a Response | 22q Deletion Interest Board ]
Posted by Caryn B Caryn --Previous Message--
on 11/11/2005, 1:09 pm, in reply to "Re: Leg pain issues?"
64.211.101.4
Hi amy, Thank you for this. I took a peek at your website about your daughter Harley and what an inspiration you both are. My daughter also has chronic respiratory issues and I feel for you on your description of up all night with the coughing. Well, I wish your family the best. Thank you for the comments and assurances about this leg pain thing and that it does happen to our kids but can be managed.
: : hi there my son who is 13yrs is
: partial digeorge and my daughter who
: is 4 yr is full blown digeorge they
: both complain of leg pain especially
: my 14yr my daughter did not walk or
: want to stand on her feet until she
: was 3 yrs old she cried when ever
: you tried to make her stand on her
: feet they hurt her so bad. she sat
: and scooted for a lonnng time
:
: --Previous Message--
: I read an article years ago when my
: daughter was diagnosed that children
: can experience leg pain from 22Q.
: I just recently noticed my daughter
: having issues at night and crying
: and complaining that her leg hurt.
: Has anyone experienced this and if
: so- anything I can do to help this?
:
: Thank you,
: Caryn
:
:
:
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