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Posted by Debbie --Previous Message--
on 11/7/2005, 3:13 am, in reply to "Re: confused"
82.40.234.36
Hi.My son already had slight apnea before surgery and after it got considerably worse. He now uses cpap which is continuous positive air pressure. He has to wear a full face mask as he mouth breaths...it delivers what I can only describe as a force nine gale into the airway to keep it open, it is awful.He is not eligible to have his operation taken down as we nearly lost him the first op and the surgeon(a different one!) said he should never have been a candidate in the first place. Oxygen is only used along with cpap if there satuarations drop significantly.
As for cardiac stuff I would urge you to get this looked into. My son did have open heart at 3 months old and despite many years of suspicious symptoms they failed to dx a very rare arterial thorax/cardiac disorder, we had to go the US to get that dx!So I would get it thoroughly checked before any surgery! I would also stress that where your child does have cardiac probs/murmurs that you discuss the need for antibiotics before any surgery as this is vitally important.
Debbie (Scotland)
: Hello again its a pleasure to have
: somebody that answers back and it
: makes me feel good to think i may be
: helping in some small way......It is
: vey daunting and although friends
: are sympathetic, they really dont
: understand and secretly they are
: thankful its me and not them!!!!!
: And i have had others that dont want
: my kids around them... But we just
: dont speak to ignorant people!!!
: Any way on a more possitive note how
: old is your eldest? And how did she
: get selected for this it sounds
: really exciting for her!
: I live about 1 hour away from
: Sydney. That is where Connor had his
: Palate Operaion done. CHILDRENS
: HOSPITAL AT WESTMEAD. Will you be
: coming with her? Or is it just a
: student thing?
: Just out of curiosity where do you
: live?
:
: And back to business, definately
: check the heart first and i would
: probably check it out evry time she
: goes in for any surgery, AND TELL
: EVERYBODY that you come into contact
: with, all the doctors. Take your
: reports so they are well aware!!
: I have come across nurses that dont
: even know what VCFS is and its
: frustrating to retell everybody you
: see. In the last operation the
: aneathasist reminded me how lucky we
: were, his first question after
: reading the file was "what
: heart operations has he had"
: Lucky for us none.
: As far as the sleep apnea goes he
: was fine before the operation, they
: did tell me this can happen post
: op!!!! He didnt snore before but now
: will forever!
: Depending on severity he will need a
: c-pap (oxygen machine i think) or
: worst case senario they will have to
: reverse the operation!! But then we
: have no chance of speech, so i am
: anxiously awaiting the sleep tests
: be done!!!
:
: again best wishes with everything, i
: am thinking of you.
: Any more questions just ask away....
:
: melonie
:
:
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