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Posted by melonie melonie
on 11/3/2005, 12:43 pm, in reply to "Re: confused"
144.138.57.57
hi liz,
With the ear tubes i beleive they do their job. Connor had failed 3 tests before they went in and passed the one after, it is only a minor operation, in and out in a day. With the IGA definately ask about it, my ENT only stumbled across that as part of a study the university were doing (he is the prof.) I dont think the genetics tested for that one.
As far as the palate operation goes, it was hard to see him go through that!! We had a pharygoplasty done (closing the airway to nose) and z plasty ( sub-mucous cleft repair) so i think it was a little harder than if he had one of those things done! He had a tube down his nose which was for oxygen for first 24 hours and they had to suction it hourly to get the blood out. The hardest part for Connor was in recovery he was highly sensitive to morphine and had some narcain and was watched very closely for hours. I had a great team at the hospital i was at! The best in Australia! The first 3 days were pretty bad for us he just had tiny little sips of things, but when we got him home to his brothers he wanted to eat everything he seen. He missed them terribly at hospital. If your daughter has speech or swallowing difficulties then i think it worth a try to give them the opportunity to communicate!
We had our post op follow up today and we are going sleep studies as they think connor may have developed sleep apnea.
I was already a walking Zombie i havent slept all night now, the sun is coming up!!!!!!! Im sure you have had nights like this.
I hope i answered your questions, if you have any more dont hesitate to email me.
Goodluck with your upcoming appointments.
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