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Posted by Cheryl
on 10/27/2009, 1:55 pm, in reply to "Re: Leg pain issues?"
173.67.143.206
My son has very bad leg pains mostly at night after I lay him down. He has seem specialists at CHOP who have told me that he has hyperextensive knees. I have to stretch his legs out a few times a day and we have also gotten him special arches for his shoes. So far ... this seems to really be helping him. He still gets some leg pain at night, but not as often as he used to.
--Previous Message--
: Hi amy, Thank you for this. I
: took a peek at your website about
: your daughter Harley and what an
: inspiration you both are. My
: daughter also has chronic
: respiratory issues and I feel for
: you on your description of up all
: night with the coughing. Well, I
: wish your family the best. Thank
: you for the comments and assurances
: about this leg pain thing and that
: it does happen to our kids but can
: be managed.
:
: Caryn
:
: --Previous Message--
: : hi there my son who is 13yrs is
: partial digeorge and my daughter who
: is 4 yr is full blown digeorge they
: both complain of leg pain especially
: my 14yr my daughter did not walk or
: want to stand on her feet until she
: was 3 yrs old she cried when ever
: you tried to make her stand on her
: feet they hurt her so bad. she sat
: and scooted for a lonnng time
:
: --Previous Message--
: I read an article years ago when my
: daughter was diagnosed that children
: can experience leg pain from 22Q.
: I just recently noticed my daughter
: having issues at night and crying
: and complaining that her leg hurt.
: Has anyone experienced this and if
: so- anything I can do to help this?
:
: Thank you,
: Caryn
:
:
:
:
:
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