[ Post a Response | 22q Deletion Interest Board ]
Posted by Nikki
on 9/23/2009, 6:45 pm, in reply to "Re: Di Geoge kids and walking"
99.253.49.122
Hi Brandy,
My son was just recently diagnosed with Di George syndrome. He just turned 2 and does not walk yet. His gross motor skills have been behind since birth, and we struggled with whether he would ever walk. He does take steps with support now and just started cruising furniture.
I know for our son, he is now getting orthotics to support his feet, ankles and lower legs. We are hoping this is going to help.
Good luck, I know it is frustrating and scary.
--Previous Message--
: Thank you Candice. Tomorrow I go to
: Edmonton AB to speak with Kelvin's
: neurologist reagarding an MRI we had
: done in June. I think she might have
: some awsners as well. Thanks again!!
:
: --Previous Message--
:
: hi brandy
:
: my guy has digeorges too and is
: walking now though he was far later
: then most of his friends. he has
: some problems now with running and
: falling down and not being able to
: jump so were taking him to a
: specialist in a couple of weeks.
: --Previous Message--
: My son Kelvin has di George syndrome
: and doesn't walk yet. He is 3, I'm
: wondering if anyone else has
: experienced that with their child.
: It seems it's not as common? If
: anyone has that same challange will
: they please awsner.
: Thanks Brandy
:
:
:
:
:
Message Thread:
« Back to thread