[ Post a Response | 22q Deletion Interest Board ]
Posted by Amy in Michigan on 5/28/2009, 7:26 pm, in reply to "Abort one twin? Quality of life?"
97.92.55.53
Cindy,
Given the time since you posted, I'm guessing you've made your decision. If you feel like talking about it, I'm wondering which way you went and how you're doing now.
I see that you didn't get any responses to your post, but it's such a personal and difficult decision that people were probably hesitant to intervene. I haven't been on the message board in months and this is the first I'd seen of your message. So, whether or not you post more, I wish you all the best in the future.
Amy
--Previous Message--
: Hi. I am 26 weeks pregnant with
: fraternal twins. After amnio, baby
: b was diagnosed with 22q11.2.
: Ultrasounds confirm multi-dysplastic
: kidney and heart defects. For the
: heart it's either Truncus Arteriosus
: type 3 or 4 or Tetralogy of Fallot,
: they aren't sure, but either case
: would require multiple open heart
: surgeries. Anyway, I am looking into
: the possibility of selective
: reduction (single abortion)of baby
: b. I know most people would think
: I'm cold for even considering, but I
: don't think I can handle losing her
: after 1, 5 or even 10 years after
: surgery after surgery and pain.
: I've read some horror stories of the
: child being in pain and suffering
: throughout her short life before
: dying in childhood. I don't think
: such a life would be worthwhile for
: her either. If I was in that
: position, I would probably have said
: to my parents, "why did you let
: me live?"
: I'm hopelessly depressed and am
: thinking that reduction will allow
: me to move on and take care of
: healthy baby A. I don't think I'm
: strong enough to take care of baby b
: (I once had a kitten that died, and
: it took me 2 years to get over the
: depression.) However, I'm also so
: afraid of regretting later on with
: guilt for aborting and thinking,
: "what if it was only a mild
: case and quality of life would have
: been okay?"
:
: Can anyone advise what I should do?
: If you had a choice with your child
: still in the womb, would you have
: aborted? Keep in mind that I will
: also have to take care of the
: healthy baby while nursing the 22q
: baby. And please I'm only looking
: for advice, not flames.
: Thank you.
:
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