[ Post a Response | 22q Deletion Interest Board ]
Posted by Alcira
on 3/24/2009, 12:19 am, in reply to "Re: You think 22q11 is going to stop me? "
70.231.148.203
Anytime. Didn't think I'd get a response! I usually scare people off. I'd think I'm a mildly affected carrier or something. It turns out that I'm starting to see how lucky I got that I wasn't affected in worse ways. My family simply has made a big deal where none exists but has made me the one who seems as though I'm the pot calling the kettle black if that makes sense. I'm working through a massive depression.
I'm anxious all the time because I'm refusing to accept negativity from my family about anything but it keeps coming. I can say again, thank God for my awesome therapist. I am about to start freelancing in order to get my health back together. It turns out I have a great endo who isn't yelling at me for being in a phase where my blood sugars aren't optimal. I've found a support group or two and realize I need to keep trying to realign my health. I feel like I can do more for the kids/adults more affected by this disorder.
But then I have to get better. I can't let someone tell me on one end I should take care of myself, then on the other say something as hurtful as "why aren't you helping others?" I can't where I'm at now but then eventually I might be able to if my life calms down. I also have learned lately that I'm not as socially messed up as I thought. That's an avoidant personality style thing. I'm actually glad my friends think I'm okay. I'm only depressed/anxious and as it turns out "not that bad". This is a relief.
--Previous Message--
: Awesome testimonial. Thank you for
: sharing.
:
: --Previous Message--
: I wanted to mention that I found
: this
: place while researching Tony Simon,
: a psychologist in Sacramento. I have
: good psychiatrist and psychologists
: of course given that should be
: mentioned. Yes, as hard as it is to
: believe, I have 22q11 but I refuse
: to be treated as special,
: amazing,& the last one that
: really bothers me because I prefer
: to remain under the radar when it
: comes to recognition, inspirational.
:
: Furthermore, I wanted to direct you
: all to how I have a blog on Live
: Journal that's meant to be an
: adult's only board. Its the only one
: of its kind on Live Journal while my
: personal blog name is Alcira.
:
: I also founded a Yahoo group for
: mild cases which got one post from a
: parent not an affected adult. My
: future work includes lots of writing
: even though my BA is in creative
: writing, AA in anthropology, AA in
: creative writing. Ya'll are getting
: a taste of my writing style here. My
: work will involve a heavy dose of
: social commentary besides science
: fiction, fantasy & other forms
: of magical realism that's the only
: reason to write anyway.
:
: What I'm wondering about at this
: minute, is my state of CA disability
: application & why I can't get
: through to the office phone number
: but not to the State #. Somehow, I
: have to wonder why they think that I
: can somehow still work despite my
: overwhelming major depression which
: is compounded by type 1 diabetes,
: anxiety, and stuff like
: hypothyroidism, a direct result of
: 22q11. Nevermind other little things
: like PTSD from high-end bullying
: experiences.
:
: Like many kids who grow to
: adulthood, I've perceived myself as
: bullied. Not that I have time to
: write a whole book on these
: experiences here but it will be
: coming. I'm not going to wait until
: I'm 40 to succeed in my writing. Nor
: am I going to sit here in these 4
: walls & wake up with a cold
: sweat when I'm 40 to realize I
: haven't done what I wanted to do in
: my life. I'm snippy enough to become
: one helluva lawyer in the field of
: malpractice.
:
: Seeing as what I have to deal with
: in mismanaged care, a sense of humor
: keeps you from.. well I'm not the
: most politically correct person, so
: I'll say keeps you from being in the
: corner acting out scenes from V for
: Vendetta. I have many interests. I
: also completely dislike being called
: out by anybody as autistic spectrum
: whatever. I might have pulmonary
: atresia as well but I'm highly
: interested in the field of private
: investigation when I get my physical
: health together.
:
: Warning all: Seroquel is BAD drug if
: you do not have hard-core
: schizophrenia or for that matter,
: bipolar. I'm on trileptal and
: lamictal for now but Seroquel has
: left me with swollen ankles. For a
: once proud martial artist who
: achieved the rank of blue Belt, this
: is just driving me crazy along with
: having to walk with a cane! I'll
: leave you all to munch on these
: words because all hope for your kids
: is not lost if you define them as
: human beings first & give them
: reason to hold on to their
: personalities. Many stories abound
: in my head although I'm gonna have
: to wrap it up. Pop by my Live
: Journals!
:
: Happy transitional period everybody!
: (can't say my dermatitis on my right
: ear is driving me too crazy since I
: decided to under-the-table take my
: antibiotic).
:
: My favorite motto I will leave you
: with is such, I may not have been
: born with a pancreas that works, or
: a thyroid, but I still have two
: middle fingers I will gladly use,
: more so on the freeway.
:
: PSA blurb: I would like to be the DA
: of my home county in 2036, which is
: the most realistic projection of how
: I can get my Masters in psychology,
: plus a law degree. That's why some
: schools have a transfer agreement
: with others. You have a paralegal
: degree, you may as well be done with
: half a year to a year but don't
: quote me on this cause I'm leaving
: out the schools for the sake of my
: own reputation.
:
:
:
Message Thread:
« Back to thread