[ Post a Response | 22q Deletion Interest Board ]
Posted by Alcira
on 1/21/2009, 4:38 pm
70.231.133.65
I wanted to mention that I found this place while researching Tony Simon, a psychologist in Sacramento. I have good psychiatrist and psychologists of course given that should be mentioned. Yes, as hard as it is to believe, I have 22q11 but I refuse to be treated as special, amazing,& the last one that really bothers me because I prefer to remain under the radar when it comes to recognition, inspirational.
Furthermore, I wanted to direct you all to how I have a blog on Live Journal that's meant to be an adult's only board. Its the only one of its kind on Live Journal while my personal blog name is Alcira.
I also founded a Yahoo group for mild cases which got one post from a parent not an affected adult. My future work includes lots of writing even though my BA is in creative writing, AA in anthropology, AA in creative writing. Ya'll are getting a taste of my writing style here. My work will involve a heavy dose of social commentary besides science fiction, fantasy & other forms of magical realism that's the only reason to write anyway.
What I'm wondering about at this minute, is my state of CA disability application & why I can't get through to the office phone number but not to the State #. Somehow, I have to wonder why they think that I can somehow still work despite my overwhelming major depression which is compounded by type 1 diabetes, anxiety, and stuff like hypothyroidism, a direct result of 22q11. Nevermind other little things like PTSD from high-end bullying experiences.
Like many kids who grow to adulthood, I've perceived myself as bullied. Not that I have time to write a whole book on these experiences here but it will be coming. I'm not going to wait until I'm 40 to succeed in my writing. Nor am I going to sit here in these 4 walls & wake up with a cold sweat when I'm 40 to realize I haven't done what I wanted to do in my life. I'm snippy enough to become one helluva lawyer in the field of malpractice.
Seeing as what I have to deal with in mismanaged care, a sense of humor keeps you from.. well I'm not the most politically correct person, so I'll say keeps you from being in the corner acting out scenes from V for Vendetta. I have many interests. I also completely dislike being called out by anybody as autistic spectrum whatever. I might have pulmonary atresia as well but I'm highly interested in the field of private investigation when I get my physical health together.
Warning all: Seroquel is BAD drug if you do not have hard-core schizophrenia or for that matter, bipolar. I'm on trileptal and lamictal for now but Seroquel has left me with swollen ankles. For a once proud martial artist who achieved the rank of blue Belt, this is just driving me crazy along with having to walk with a cane! I'll leave you all to munch on these words because all hope for your kids is not lost if you define them as human beings first & give them reason to hold on to their personalities. Many stories abound in my head although I'm gonna have to wrap it up. Pop by my Live Journals!
Happy transitional period everybody! (can't say my dermatitis on my right ear is driving me too crazy since I decided to under-the-table take my antibiotic).
My favorite motto I will leave you with is such, I may not have been born with a pancreas that works, or a thyroid, but I still have two middle fingers I will gladly use, more so on the freeway.
PSA blurb: I would like to be the DA of my home county in 2036, which is the most realistic projection of how I can get my Masters in psychology, plus a law degree. That's why some schools have a transfer agreement with others. You have a paralegal degree, you may as well be done with half a year to a year but don't quote me on this cause I'm leaving out the schools for the sake of my own reputation.
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