22q Deletion Interest Board: cvfs

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cvfs

Posted by jenny on 1/5/2009, 2:40 pm
121.222.238.4

hey
i have two young sons aged 5 and 6 with velo cardio facial syndrome. it gets very lonely with this syndrome as no one really knows bout it and having to keep explaining it to dr's ect is fustrating but still has to be done.if any one feel like this you aremore than welcome to e mail me..thanks jen

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cvfs - jenny 1/5/2009, 2:40 pm
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--Previous Message-- : hey : i have two young sons aged 5 and : 6 with velo cardio facial syndrome. : it gets very lonely with this : syndrome as no one really knows bout : it and having to keep explaining it : to dr's ect is fustrating but still : has to be done.if any one feel like : this you aremore than welcome to e : mail me..thanks jen :

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