[ Post a Response | 22q Deletion Interest Board ]
Posted by Amy
on 10/29/2008, 10:12 pm, in reply to "Digeorge Syndorme - Sleep issues"
97.92.53.101
I know I'm posting late on this thread, but it's nearly 11pm and my 11 y.o. daughter with 22q is still up. Again. I came to the board to ... what? look for input. vent.
I hope you have a better road than I have on this sleep issue. It's been nothing but frustration since this child was a baby (in terms of sleep). She never slept good through the night. When she was a little older, she slept on the floor in our bedroom, then for a much shorter time she actually slept relatively well in her own bed.
But, it seems all good things must end. now for example, she won't go to sleep unless I'm physically in her bedroom. I've put a rocking chair near her bed to make myself comfortable. When she finally falls asleep, I sneak from her room, hoping she won't wake up, because if she does she wanders down the stairs, crying and sometimes yelling and wakes up the whole house. It's like having a baby again, only with more anger and frustration on my part.
Then as the cherry on top, we go to a psychiatrist for meds and he tells me it's because she's a middle child. Putz.
We did get a medication - Chlonodine. It MAY have a minimal effect. If things don't turn around, Dr. Insightful is going to have to up the meds, or we'll look for someone else.
Sorry to be a downer. I guess I've figured out why I'm on the board tonight. To vent.
Best of luck with your children
--Previous Message--
: Our daughter is 2 years old. She was
: dignosed with Digeorge Syndrome in
: her 1st week of life. She had Open
: heart surgery at 3 months old, to
: remove a Vascular ring and to repair
: 2 VSD's. She is doing quite well
: today. She is a very bright child
: as far as understanding goes. She
: is starting to speak. She is slowly
: potty training.
:
: We are having a terrible time at
: night to get her to bed. She still
: sleeps in a crib, she has shown no
: interest into moving into a bed. We
: have it in her room already.
: Sometimes she doesn't sleep through
: the night, we made the mistake of
: bringin her into our bed. Last
: night I set up her playpen in our
: room and explained to her that if
: she was going to sleep in our room
: that is where she has to sleep. She
: went right to sleep. This was after
: being in the crib and crying for 1/2
: hour. Does anyone else have
: sleepless nights? We are up at
: least 3 nights a week.
:
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