[ Post a Response | 22q Deletion Interest Board ]
Posted by Jodi
on 10/14/2008, 6:11 pm, in reply to "deletion22q13 seizures?"
63.251.162.202
Hi Jodie, my name is Jodi as well. I live in Washington State, and my daughter has the 22q13 Deletion as well. Have you joined our Yahoo Group for 22q13 Deletion?
--Previous Message--
: My 10 month old son was diagnosed 3
: weeks ago with Phelan-Mcdermid
: syndrome. Two days ago he seemed to
: have some seizures. they lasted
: about 5 seconds, his eyes were open
: and fixed, mouth open and screaming,
: arms and legs shaking a little. he
: had about 10 of these in 45 minutes,
: and then stopped. We took him to
: hospital, but only triage nurse
: witnessed them. Doctors not sure if
: they were actually seizures or not,
: as no one knows enough about the
: syndrome, even our geneticist. Our
: son did have a fever on and off and
: a virus, so they are not sure if it
: was linked to this or the syndrome,
: as the length of the
: "seizure" did not fit with
: febrile convulsions. Just wondering
: if any one else knows anything about
: this. As we have left the hospital
: still not knowing really what had
: happened. thanks.
:
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