[ Post a Response | 22q Deletion Interest Board ]
Posted by sharon
on 10/10/2008, 1:20 pm, in reply to "Re: Our son 13 yrs old"
79.74.135.28
--Previous Message--
: Darlene, I just wanted to offer that
: In my opinion the recomendations
: given by Nancy are excellent. My
: Son is 29yrs old and suffered the
: same type of symptoms at about 15
: yrs except for the skelatal and
: muscular limitations. However we
: did not have a proper diagnosis of
: 22Q until he was 27 yrs old... so
: when these symptoms began he was
: referred to mental health
: proffesionals that started down the
: long road of what they
: understood...After many years of
: medications that have very little if
: any affect we found that he had 22 q
: and have identified that these
: symptoms are very "autistic
: spectrum" in nature and both
: the effectiveness of medication and
: the degree of symptoms very greatly
: from person to person. I whole
: heartedly recommend you only deal
: with experts in 22q to be referred
: for treatment of these mental and
: emotional symptoms.
:
: --Previous Message--
: Need help with issues with my 13
: year
: old.
: Sleep issues, seeing things,
: anxiety, learning disabilities, not
: able to walk (bones can be heard
: snapping, when this happens he needs
: a cane)immature behaviour, flapping
: hands and rocking, anyone know what
: may be happening?
:
: i have a 10 year old he had 22q deletion of chromozone then they gave me the proper name which is phelen mcdermot syndrome he has no speech has a wheel chair as he is unsteady on his feet and wears special support boots carnd do anything for him self and is very aggressive biting scratching pulling screaming we can no longer go on holidays cos my son attacked people on the airoplane and the looks people give like you carnt controll your own child he attacked on the full week holiday he had diazapan and it made him worse so i poured the rest down the sink any one no what i can do he also wears tena lady nappys to thanks for reading this sharon,x
:
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