[ Post a Response | 22q Deletion Interest Board ]
Posted by Leah
on 9/8/2008, 12:04 pm
58.170.149.236
hi
my 9 month old daughter has just been diagnosed with Q22 deletion, and I am just devastated, I have no idea hw I am going to deal with this, I am just so scared. I am only 23 and my whole life I have grown up with my sister who has an intelectual disability but do not know the medical name for what she has, and just seeing her, how she is, I just don't know how I'm going to deal with it if my daughter is te same way. My mum refuses to get her tested in fear she will have it and she does not want to be blamed for it, but this will determine weather or not my fiance and I have more children.
I'm just so scared, my daughter is reaching all her milestones and many doctors say they she looks like a normal looking baby and you wouldn't even know jus by looking at her that she has something wrong with her.
I'm just scared of the unknown, its just a big waiting game at the moment to see how severe its going to be.
And the thing that pisses me off the most is that during my pregnancy with her I did everything perfect, I exercised ate all the right foods, did not have not one bad piece of food, not one coffee, not one drop of alcohol, I don't take drugs so theres no need to mention that, di not have one painkiller such as panadol or nuraphen. I just did all the right things and still shes not right. I was stressing so much that I did everything right because she wasmy 4th pregnancy, I had 3 prior misscarriages before her and they did all teting to find out wh and there was o reason, everything looked normal with my cells and chromosomes.
Just don't know what to do from here, plus I live in a small mining town in the middle of no where so theres not much support here and we have no family up here so its a bit hard. Please someone respond with some encouraging words.
HELP!!!
Message Thread:
« Back to thread