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Posted by Hazel
on 7/12/2008, 10:49 am, in reply to "22q11 member from UK - Thought I'd share my Story."
86.169.61.63
Hello Lisa Elliott, i have a daughter called samantha abd she is 19 and cant find work because of her 22q11 syndrome. She is starting to get depressed now. She has fallotts and rods and speach problems to. What sort of work do you do and do you get suppoeted at work xxxxx
--Previous Message--
: Hi, Thought I'd share my story. I
: found out that I had 22q11 when I
: was 19 and had a test done. I was
: born with a congential Heart
: Condition called Tretalogy of
: Fallot, which is not suitable for
: surgery for the life risk to high.
: I've also got Scholiosis now
: corrected. I have a Cleft Palate and
: a double Uvula. I was due to have
: corrected surgery on that but have
: got a large vein at the back of the
: throat made difficult for surgery. I
: was fitted with a brace to improve
: my speech but found it
: uncomfortable. Speech not to bad
: unless I have a cold. I have found
: it difficult to swolle things as a
: baby. I have clubbed fingers and
: neckI was having speech therapy at
: school and passed my exams and now
: in employment. I find remembering
: things hard to do and have to write
: things down and sorting out things
: on the phone and filling in forms a
: struggle my parents and carers help
: out. I'd like to hear from some one
: soon.
:
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