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Re: deletion 22 q 13 syndrome

Posted by Connie Spring on 5/20/2008, 9:40 am, in reply to "deletion 22 q 13 syndrome"
205.188.117.195

Hi Susan, I have a 9 year old daughter with Phale-McDermid syndrome. She has been recently diagnosed as legally blind. Does your son have any vision problems? We were floored because she has never shown any indication that she has trouble seeing objects. We have to have more extensive testing and glasses made, but had to cut her appointment short due to a meltdown. She has a lot of autistic behaviors. I also wonder if your son has problems with cellulitis and if he does what can you do to help prevent it? Thanks, Connie --Previous Message-- : Hi. I have a 28 year old son with 22 q : 13 syndrome and I would be very : happy for any parent to contact me : with any queation they may have : about this condition. We have been : through a great deal, but the MAIN : REASON I can help you is that you : may be able to PREVENT certain : things from occuring along the way : as your child grows and develops, : having the knowledge of what is : possible : : Yours sincerely : Susan Gladston : Sydney Australia :

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Message Thread: deletion 22 q 13 syndrome - Susan Gladstone 2/6/2008, 3:57 am Re: deletion 22 q 13 syndrome - Jodi Rhoden 5/30/2008, 12:12 pm Re: deletion 22 q 13 syndrome - Connie Spring 5/20/2008, 9:40 am Re: deletion 22 q 13 syndrome - Susan Gladstone 5/20/2008, 5:06 pm Re: deletion 22 q 13 syndrome - Connie 5/20/2008, 7:55 pm Re: deletion 22 q 13 syndrome - Paul Smith 2/26/2008, 2:00 pm Re: deletion 22 q 13 syndrome - Susan Gladstone 2/27/2008, 12:51 am « Back to thread

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