[ Post a Response | 22q Deletion Interest Board ]
Posted by dawn
on 2/11/2008, 10:17 am, in reply to "Re: prenatal diagnosis of ch22q11"
71.254.176.253
Well our little girl is almost 6 months old now. She is beautiful and absolutely a treasure. Aside fom the Tetralogy of Fallot, which is awaiting repair, she doesn't seem to be lifting her soft palate and has tiny lowish ears and the characteristic look to her face. She is a bit behind in her early infant development, but even just having the heart defect can cause that. She is quite alert and aside from being tiny (she is a petite 16 lbs) she appears normal to most people. Right now we are juggling keeping her well and out of crowds and public places while doing normal stuff with our older kids. I think it hs been stressful on them too.
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