[ Post a Response | 22q Deletion Interest Board ]
Posted by Troyce on 7/11/2007, 11:57 am, in reply to "22.1q deletion" --Previous Message--
72.79.6.231
It's really good to know that other parents are looking for support also. I have a 3 year old son that was diagnoised at 18 months old at hackensack medical center. There's a really good book called Faces Of Sunshine The 22q11.2 deletion that's Great. I really suggest getting this book. It's very diffcult trying to understand the route from this point on. Please don't give up hope and know that you're not alone in this process. Please feel free to call me if you would like to talk. I'm in New Jersey 848-250-1937
: I'm looking for parents that also have
: children with 22.1q deletion
: syndrome. my son is 10 months old
: and I don't really know alot about
: this issue. I've been in denial for
: a while and didn't really have the
: guts to research it further fearing
: what I might find; but in the end
: the only way i am going to be able
: to come to grips with it, is if i
: start to educate myself about the
: condition.
:
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