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Re: 22.1q deletion

Posted by Nancy Brunetti on 7/8/2007, 1:50 pm, in reply to "Re: 22.1q deletion"
205.188.116.145

Hi Danielle. My e-mail is dannanjak@aol.com. Please feel free to e-mail me. NancyB --Previous Message-- : Hey that's great!!!! My email is : drkeilig@hotmail.com email me and : we'll talk. : : --Previous Message-- : Hi Danielle, my son has 22q11.2 : deletion. We just found out a year : ago. He is 6 1/2 and I am still : coming to grips with it. There is a : good handbbook you can order called, : Faces of Sunshine. It is put out by : The Children's Hospital of : Philadelphia. : What do you want to know? I have : been reading a lot on it lately. : maybe I can help. Let me know. : Nancy : : --Previous Message-- : I'm looking for parents that also : have : children with 22.1q deletion : syndrome. my son is 10 months old : and I don't really know alot about : this issue. I've been in denial for : a while and didn't really have the : guts to research it further fearing : what I might find; but in the end : the only way i am going to be able : to come to grips with it, is if i : start to educate myself about the : condition. : : : : :

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Message Thread: 22.1q deletion - danielle 6/29/2007, 2:48 pm Re: 22.1q deletion - Troyce 7/11/2007, 11:57 am Re: 22.1q deletion - Nancy B. 7/5/2007, 7:39 am Re: 22.1q deletion - danielle 7/5/2007, 11:38 am Re: 22.1q deletion - Nancy Brunetti 7/8/2007, 1:50 pm « Back to thread

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