[ Post a Response | 22q Deletion Interest Board ]
Posted by danielle on 7/5/2007, 11:38 am, in reply to "Re: 22.1q deletion" --Previous Message--
206.222.192.247
Hey that's great!!!! My email is drkeilig@hotmail.com email me and we'll talk.
: Hi Danielle, my son has 22q11.2
: deletion. We just found out a year
: ago. He is 6 1/2 and I am still
: coming to grips with it. There is a
: good handbbook you can order called,
: Faces of Sunshine. It is put out by
: The Children's Hospital of
: Philadelphia.
: What do you want to know? I have
: been reading a lot on it lately.
: maybe I can help. Let me know.
: Nancy
:
: --Previous Message--
: I'm looking for parents that also
: have
: children with 22.1q deletion
: syndrome. my son is 10 months old
: and I don't really know alot about
: this issue. I've been in denial for
: a while and didn't really have the
: guts to research it further fearing
: what I might find; but in the end
: the only way i am going to be able
: to come to grips with it, is if i
: start to educate myself about the
: condition.
:
:
:
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