[ Post a Response | 22q Deletion Interest Board ]
Posted by Nancy B. on 7/5/2007, 7:39 am, in reply to "22.1q deletion" --Previous Message--
64.12.116.138
Hi Danielle, my son has 22q11.2 deletion. We just found out a year ago. He is 6 1/2 and I am still coming to grips with it. There is a good handbbook you can order called, Faces of Sunshine. It is put out by The Children's Hospital of Philadelphia.
What do you want to know? I have been reading a lot on it lately. maybe I can help. Let me know. Nancy
: I'm looking for parents that also have
: children with 22.1q deletion
: syndrome. my son is 10 months old
: and I don't really know alot about
: this issue. I've been in denial for
: a while and didn't really have the
: guts to research it further fearing
: what I might find; but in the end
: the only way i am going to be able
: to come to grips with it, is if i
: start to educate myself about the
: condition.
:
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