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Posted by Nancy Brunetti --Previous Message--
on 7/5/2007, 6:24 am, in reply to "Are kids with digeorge able to talk "
64.12.116.138
Hi.My son is 6 1/2. He did not start talking until 2 years ago. Something clicked with him. He did very well with sign, but we had to work hard with him. He also has a cardiac condition which affects his airway. Try taking your daughter to an Ear Nose and Throat doctor and have her evaluated if you have not. A lot of kids with DiGeorge have muscle weakness in their mouth, called VPI (velopharangeal insufficency) even though they do not have the traditional cleft palate that accompanies DiGeorge. My son also has mandibular nerve paresis, nerve does not work, a small throat, a leak in his voice box. Every child is affected differently with the syndrome. Maybe there is a medical reason you are not aware of. I hope this helps. nancy
: my daughter autumn is 5 years old and
: has been goin to speech therapy
: among others since she was about a
: year , however we cannot get her to
: talk . she says the word mama and
: more very rarely and they say she
: has the potential to talk but yet
: she hasnt yet . Im just curious if
: this means she is never goin to talk
: and if kids with digeorge cant talk
: or its just some cases?
:
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