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Posted by michelle --Previous Message--
on 5/18/2007, 8:28 pm, in reply to "Re: Are kids with digeorge able to talk "
198.235.198.191
: hi , i recently took my daughter to a
: ent specialist and asked if she had
: any type of cleft and they said that
: she didnt that her arch was high but
: they said that is not whats causing
: her not to talk . but i disagree but
: i dont get anywhere and i feel that
: something is wrong because she
: understands everything i say and she
: does try and say a few things but it
: always sounds like ee and ba a ma .
: they said that i should take her to
: a neurologist because they said she
: is not connecting the words from her
: brain to her mouth . but i dont
: understand how thats possible
: because like i said she understands
: things and when she sees somehting
: like a bannana she will try and say
: it, so it seems like that would be
: connecting the words but notable to
: say them .
:
: --Previous Message--
:
: --Previous Message--
: my daughter autumn is 5 years old
: and
: has been goin to speech therapy
: among others since she was about a
: year , however we cannot get her to
: talk . she says the word mama and
: more very rarely and they say she
: has the potential to talk but yet
: she hasnt yet . Im just curious if
: this means she is never goin to talk
: and if kids with digeorge cant talk
: or its just some cases?
:
: My son couldn't say anythign but
: mamam until he has his submuscous
: cleft palate repaired at age 2 1/2
: then his speech took off. He is five
: and still needs therapy for throat
: sounds but it was amazing. Have you
: south a second opinion from a cleft
: clinic type atmosphere?
:
:
:
My son had a sub-mucous cleft palate repair at 3 and a half, that didn't help and at 6 years had a pharyngeal flap repair and miracle of miracles he can now talk. It has taken along time and alot of work on his part, but 2 years after the surgery he was assessed at having 85% of normal speech and will eventually achieve 100%. Don't give up, it is a long and winding road, but well worth it when you are finally telling your once none speaking child that he needs to quit talking for a while!! We still laugh about that.
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