[ Post a Response | 22q Deletion Interest Board ]
Posted by marie --Previous Message--
on 2/28/2007, 9:51 pm, in reply to "22Q 11 DELETION"
72.139.160.249
dear candice: hello i support a 17year old young man with di george syndrome. when he was born he also underwent a trac, i told his parents i read your email and asked if they could offer any advise. not sure if it will help but they know what you are going through, they had absolutely no support back then, they don't have the internet but can get it at the library. if you email me your questions i can give it to them and hopefully they can help you out of offer some support. please let me know if this helps. i saw your post a few months back and took this long to reply, i am sorry. sincerly, marie, from canada
: I HAVE A NIECE THAT IS 6MONTHS OLD
: WITH 22Q 11 DELETION. WE NEED SOME
: FEEDBACK WITH HAVING A LARYNGEAL
: STENOSIS ALONG WITH A VENTRICLE
: SEPTUM DEFECT AND PLACING A TRACH
: FOR SURGERY. MY SISTER NEEDS TO TALK
: TO PEOPLE THAT HAVE THE SAME
: SITUATIONS FOR SUPPORT AND DECISION
: MAKING
:
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