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Posted by Tonya on 2/19/2007, 3:24 pm, in reply to "Complete Digeorge syndrome" --Previous Message-- Tonya
74.240.91.199
:My name is Tonya. My husband and youngest daughter have partial DGS. Teralynn(14 m/o), had a VSD, hypocalcemia, umbilical hernia, sub mucus cleft palate and she has problems with her eyes(they water and mat together alot). She still cannot walk and at 13 m/o got her first teeth. She's a couple of months behind in development and weight. She goes to an early intervention program 2 times a week. She's coming along at her own pace. She had open heart surgery at 4 months to repair her VSD and she came off of the calcium at 7 months. Sorry I could not be more halp.
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