[ Post a Response | 22q Deletion Interest Board ]
Posted by nicolett on 12/4/2006, 7:46 pm
72.139.160.249
just want to say thank you for this site. i support a young man with di george syndrome and i was trying to learn more about it. his family i know don't own a computer but have told me they would love to talk to other families who have a child with di george, especially to see if they have gone through the many medical conditions they had to when their son was young ( heart surgery, trac, etc.) reading on this board i see they could offer alot to others and in turn receive support. they also experienced in their son behaviours, which were not there until he became a teenager. he is doing great now and i am so lucky to be able to be a part of the team to support him. i will pass this site info onto his parents and hope you will all link up. keep up this site, it really is a help to those who are searching.
Message Thread:
« Back to thread