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Re: 22.11 deletion

Posted by kayleigh on 9/19/2006, 2:46 am, in reply to "22.11 deletion"
84.45.130.28

--Previous Message-- : We just adopted a baby from Korea. : Just before leaving we found out : she's deaf.. She has cleft palate, : vsd & pda. We have been told : she will never hear or speak which : does not really bother us. Just : frustrated with the way doctors act. : I'm looking for information on older : children or what's expected. They : are fairly certain she is 22q. we : are awaiting all the testing to come : back. Her malformation in her ear : is rare and is associated to this : spectrum of genetic deletions. : She's happy but has been very sick. : She has major feeding issues. I : would love to hear from anyone with : an older child living with 22q : deletion. Our daughter is 16 mos. : old. and been through many : surgeries. The mental/psychological : issues are concerning. We have read : alot. But not on life : expectancy/older child development. : Thanks Rebecca-Florida :

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Message Thread: 22.11 deletion - Rebecca 4/20/2006, 9:18 am Re: 22.11 deletion - kayleigh carol barnard 9/19/2006, 2:50 am Re: 22.11 deletion - Karla 7/2/2008, 8:37 pm Re: 22.11 deletion - kayleigh 9/19/2006, 2:46 am Re: 22.11 deletion - Megan Jones 12/11/2006, 11:04 pm Re: 22.11 deletion - Nancy 12/27/2006, 8:15 am Re: 22.11 deletion - Mark 4/21/2006, 8:38 am « Back to thread

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