[ Post a Response | 22q Deletion Interest Board ]
Posted by Dianna --Previous Message--
on 9/11/2006, 10:40 pm, in reply to "experiences wanted"
209.94.95.1
my 3rd child also. she is from a differnet father, but it has been real tough. it has caused many problems, yet she does not have heart problems she has had back surgery, and kidney stones along with slow learner. she is going to be 18 and is a junior in school. i feel good that she is still in school, it has been very tough for her. She will be a very strong individual, just need to get her there
: My third child was diagonosed with
: 22q11 deletion (DiGeorges). I knew
: she may have had a genetic disorder
: prior to birth since she had several
: heart defects.
:
: I have a 4 year old daughter and 2
: 1/2 year old son as well (neither
: have the disorder), and wondering if
: anyone else out there had troubles
: with pumping breast milk and dealing
: with insurance companies supplying
: materials for an NG tube (which she
: came home with from Johns Hopkins).
:
: We are awaiting for her next surgery
: but just wondering if anyone else
: has had older kids with a younger
: siblings.
:
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