[ Post a Response | 22q Deletion Interest Board ]
Posted by Venus --Previous Message--
on 9/8/2006, 7:23 pm, in reply to "Re: experiences wanted"
4.248.10.57
:
: --Previous Message--
: My third child was diagonosed with
: 22q11 deletion (DiGeorges). I knew
: she may have had a genetic disorder
: prior to birth since she had several
: heart defects.
:
: I have a 4 year old daughter and 2
: 1/2 year old son as well (neither
: have the disorder), and wondering if
: anyone else out there had troubles
: with pumping breast milk and dealing
: with insurance companies supplying
: materials for an NG tube (which she
: came home with from Johns Hopkins).
:
: We are awaiting for her next surgery
: but just wondering if anyone else
: has had older kids with a younger
: siblings.
:
: We have a 14 yr old son, a 11 yr old
: daughter, both typical. Our third
: child (a son) was born with 22q11,
: he's now 8. Would love to talk with
: someone in a similar position. Feel
: free to email me
:
Aloha....We just found out after 15 years that our oldest child (15) has VCFS. We also have 4 other children that was not affected. I would love to have someone who is dealing with this email me. Maybe I could be of some help also since my daughter is 15.
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