[ Post a Response | 22q Deletion Interest Board ]
Posted by Michelle --Previous Message--
on 9/7/2006, 8:49 pm, in reply to "experiences wanted"
199.247.235.29
: My third child was diagonosed with
: 22q11 deletion (DiGeorges). I knew
: she may have had a genetic disorder
: prior to birth since she had several
: heart defects.
:
: I have a 4 year old daughter and 2
: 1/2 year old son as well (neither
: have the disorder), and wondering if
: anyone else out there had troubles
: with pumping breast milk and dealing
: with insurance companies supplying
: materials for an NG tube (which she
: came home with from Johns Hopkins).
:
: We are awaiting for her next surgery
: but just wondering if anyone else
: has had older kids with a younger
: siblings.
:
We have a 14 yr old son, a 11 yr old daughter, both typical. Our third child (a son) was born with 22q11, he's now 8. Would love to talk with someone in a similar position. Feel free to email me
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