22q Deletion Interest Board: new and not alone

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new and not alone

Posted by Heather on 8/10/2006, 1:09 am
66.136.159.157

Hi, My son's name is Mason we found out he had 22q11 at age 4. He is now 6. we have been trying to get agencys to hook us up with other families in our area. With hippa law its been hard. Going on some yearly research i came across this site. Yeah! I have been reading all the postings and found some usefull info ( teeth,leg,sleeping problems) alot of the doctors we are seeing in our area do not deal alot with this problem. We were just seeing rhumetiod about his leg pain and they saw his muscle immzimes were slightly elevated. Has anyone else seen this in their testing? thank for being here.

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new and not alone - Heather 8/10/2006, 1:09 am
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--Previous Message-- : Hi, My son's name is Mason we found : out he had 22q11 at age 4. He is now : 6. we have been trying to get : agencys to hook us up with other : families in our area. With hippa law : its been hard. Going on some yearly : research i came across this site. : Yeah! I have been reading all the : postings and found some usefull info : ( teeth,leg,sleeping problems) alot : of the doctors we are seeing in our : area do not deal alot with this : problem. We were just seeing : rhumetiod about his leg pain and : they saw his muscle immzimes were : slightly elevated. Has anyone else : seen this in their testing? thank : for being here. :

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