[ Post a Response | 22q Deletion Interest Board ]
Posted by Debbie on 4/23/2006, 3:49 pm, in reply to "Re: behavior issues" --Previous Message--
82.40.234.36
Hi, we made the trip from the Uk to CHOP Sept 2001 and despite the terrible time your country had we were treated like royalty!It was the best decision we ever made for our son, he was 11 at the time.They were bale to dx some quite nasty things that had previously been ignored here, made loads of suggestions, gave us untold amounts of advice,I can't recommend it enough!
: Sherry,
: Now it's my turn to ask you a
: question :~) Can you tell me a bit
: about CHOP? I've found Drs.
: closer to home that I'm pleased
: with, but I keep thinking it might
: be worth a trip at some point.
: What was your experience like?
: Amy
:
: --Previous Message--
: Amy,
: Thanks so much for your info. He
: has had some tests done in school
: and at other hospitals. I am
: thinking of taking him back to
: Philadelphia. He was there when he
: was 4 and is now 10. I can't
: believe I just found this website.
: It is wonderful!
: Thanks again,
: Sherry
:
: --Previous Message--
: Hi Sherry,
: I know what you mean with the
: concerns over behavior issues. My
: daughter (8-yrs old) due to issues
: with 22q, is definately
: higher-maintenance than my other
: children.
:
: I believe in getting as much
: information as I can. And
: fortunately, there are some good
: services out there.
:
: Have you ever had a psychological
: evalution done on your son? We've
: had two neropsyc evals done on Laura
: (one was through a research project,
: the other was clinical - where you
: get more information) They were
: very helpful - covering things like
: intellectual achievement, memory
: skills, speech and language
: functioning and social, emotional
: and adaptive functioning.
:
: You may be able to get certain tests
: free through your school district.
:
: As far as books or programs to help
: with discipline... I know there are
: alot out there. One program that
: I've attended that I really liked is
: called "Love and Logic".
: They promote the idea of giving your
: child choices in as many areas of
: his life that you can - alot of them
: are small choice that, to a parent,
: would be insignificant. (Do you
: want to wear your blue shirt today
: or your red one?) The nice thing
: is, the parents offer the choices
: and so maintain control in that way,
: and when the times come that the
: parent has to make the decision,
: it's supposed to be easier for the
: child to accept because he's already
: been given opportunities to exercise
: control on his own.
:
: Does it work for everyone?
: Probably not, and actually I don't
: remember to use it all the time.
: But it's a nice tool to learn.
:
: I think you're wise to come to the
: board and look for input. There's
: value in a multitude of opinions.
: Good luck with your decision.
:
: Amy
:
: --Previous Message--
: Hi My son was diagnosed at birth
: with
: 22q11.2. He has had a lot of
: medical problems. Those we can deal
: with. We are having a lot of
: behavioral issues. Does anyone know
: of any books that deal with
: discipline and behavior techniques
: that would be appropriate for
: children with this diagnosis. He is
: mentally at about a 5yr. old level.
: Thanks for any help! Sherry
:
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