
Posted by Diana on 4/12/2006, 10:18 am, in reply to "daughter with 22q13.3 del." --Previous Message--
67.170.72.124
Your daughter is the sweetest little girl in the world and you and Renae are great parents who will provide Ellie with all the love and support she needs to be all that is possible.
: Hello, are 1 year old daughter Ellie
: was just diagnosed with 22q13.3
: deletion. My wife and I have been
: on the internet, and are overwelmed
: with the amount of information.
: However, we don't know what may
: really apply to our daughter. We
: understand that all children develop
: different, and only time will tell
: what lies ahead for us. Some of the
: information we are reading is very
: tough to take, and we would really
: like to talk to someone that is
: experiencing the same thing. I have
: read on the internet that most
: children never get past a 2 year old
: learning level?? We have Ellie in
: physical/speech/swimming therapy
: weekly, are there any other
: suggestions? What does the future
: look like? Thank you - Jeff
:
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