[ Post a Response | 22q Deletion Interest Board ]
Posted by Jeff on 4/10/2006, 8:33 pm
66.220.118.206
Hello, are 1 year old daughter Ellie was just diagnosed with 22q13.3 deletion. My wife and I have been on the internet, and are overwelmed with the amount of information. However, we don't know what may really apply to our daughter. We understand that all children develop different, and only time will tell what lies ahead for us. Some of the information we are reading is very tough to take, and we would really like to talk to someone that is experiencing the same thing. I have read on the internet that most children never get past a 2 year old learning level?? We have Ellie in physical/speech/swimming therapy weekly, are there any other suggestions? What does the future look like? Thank you - Jeff
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