[ Post a Response | 22q Deletion Interest Board ]
Posted by Caryn B. on 3/3/2006, 12:10 pm, in reply to "22q11.2 DS Foundation" Thank you! I will be checking out the site! Caryn B. --Previous Message--
64.211.101.4
Mark, It is wonderful to know people llike you are out there researching and making life better for these little ones with 22Q!!!!!
mother to Samantha 4 1/2 years old with VCFS/22QDeletion/DiGeorges Syndrome.
: We lost our first baby girl to
: complications from 22q11.2 deletion
: syndrome at nine months old in the
: summer of 2003. Even though our
: little angel isn't here with us
: anymore, my wife and I wanted to do
: something to increase awareness. I
: am finishing up my Master's thesis
: on Immunologic issues in patients
: with 22q deletion. My wife joined
: the Board of a fairly new 22q11.2
: group called the International
: 22q11.2 Deletion Syndrome
: Foundation. Their website is
: www.22q.org. They are based out of
: the PA/NJ area. Please visit the
: website or email me for more
: information. I have been
: researching this deletion for a few
: years now and can find out the
: answers to some commonly asked
: questions. We are always willing to
: help anyone with questions regarding
: this syndrome. I hope I can help you
: too!
:
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