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22q11.2 DS Foundation

Posted by Mark (MJT) on 3/2/2006, 2:53 pm
68.32.202.207

We lost our first baby girl to complications from 22q11.2 deletion syndrome at nine months old in the summer of 2003. Even though our little angel isn't here with us anymore, my wife and I wanted to do something to increase awareness. I am finishing up my Master's thesis on Immunologic issues in patients with 22q deletion. My wife joined the Board of a fairly new 22q11.2 group called the International 22q11.2 Deletion Syndrome Foundation. Their website is www.22q.org. They are based out of the PA/NJ area. Please visit the website or email me for more information. I have been researching this deletion for a few years now and can find out the answers to some commonly asked questions. We are always willing to help anyone with questions regarding this syndrome. I hope I can help you too!

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Message Thread: 22q11.2 DS Foundation - Mark (MJT) 3/2/2006, 2:53 pm Re: 22q11.2 DS Foundation - Nicole 3/4/2006, 7:14 am Re: 22q11.2 DS Foundation - Mark 3/4/2006, 12:35 pm Re: 22q11.2 DS Foundation - Caryn B. 3/3/2006, 12:10 pm « Back to thread

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