
Posted by melonie thanks
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on 2/14/2006, 3:52 am, in reply to "Re: sleep apnea post surgery"
144.138.57.136
hi debbie,
Since i posted last message we have had more sleep tests done! Connor has severe sleep apnea and we are going tomorrow and next night to trial the c-pap!
He is 4... The nurse told me that he may need upper airway reconstruction.
And that the c-pap itself causes problems..
This is all very scary as i am sure u well know..
Just wondering if you share some more info on your experience or knowledge...
Melonie
--Previous Message--
: hi! This is exactly what happened to
: us although my son did have apnoea
: before surgery and should therefore
: never have been a candidate but that
: is a whole other story! I think most
: kids usually have their tonsils
: removed and that helps considerably.
: In extreme cases they suggest the
: reversal..for us it wasn't an option
: as the surgery/apnoeaic probs/probs
: with anaesthetic were against him so
: he has been using cpap and will
: continue to for the rest of his
: natural life. this is by no means an
: easy option, he was 13 when he
: started, absolutely hates it etc but
: it has improved his quality of life
: for things that had always been an
: issue with him! I think if you are
: being offered the tonsillectomy this
: is a good way to go as this will
: free up a great deal of room in the
: airway. The majority of kids in a
: sleep apnoea group I am in have this
: done to reverse the apnoea and in
: the majority of cases it is
: successful!
: Mum to Simon, age 15, 22q11
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