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Re: Asymmetric Crying Facies

Posted by Michele on 2/12/2006, 1:31 am, in reply to "Re: Asymmetric Crying Facies"
24.196.103.112

Thanks for the reply. I had given up on checking the board, but thought I'd given it another look! We are thinking about having a surgery to correct the missing muscle. Have you looked into this at all? I just wondering if anyone has had success with it. Our doctors haven't really been able to tell us how our daughter would be affected (without the surgery), other than having a crooked smile. I'm glad to hear that your son is doing well after his surgeries. My daughter had one open heart to correct the VSD and all is well now with her heart. Any info you can share on what you know about the ACF would be great! Thanks! --Previous Message-- : : My son has digeorge syndrome and has : ACS it just reminds me of sylvester : stalone ( i think thats how he : spells his name .. My son is now 3 : and is doing very well after 2 open : hearts.... : --Previous Message-- : I am really hoping to hear from some : people who have ACF or have a child : with it. My daughter just turned 1 : and doesn't have the 22 deletion. : But, she had a VSD, a missing : kidney, and the facial asymmetry. We : are considering surgery for this and : I'm wondering how it progresses as : the child gets older. Any help would : be appreciated! : : :

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Message Thread: Asymmetric Crying Facies - Michele 1/20/2006, 11:36 pm Re: Asymmetric Crying Facies - Jon 1/27/2006, 10:59 pm Re: Asymmetric Crying Facies - danyell burney 12/20/2006, 10:15 pm Re: Asymmetric Crying Facies - Michele 2/12/2006, 1:31 am « Back to thread

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