
Posted by Jon on 1/27/2006, 10:59 pm, in reply to "Asymmetric Crying Facies"
71.199.80.225
My son has digeorge syndrome and has ACS it just reminds me of sylvester stalone ( i think thats how he spells his name .. My son is now 3 and is doing very well after 2 open hearts....
--Previous Message--
: I am really hoping to hear from some
: people who have ACF or have a child
: with it. My daughter just turned 1
: and doesn't have the 22 deletion.
: But, she had a VSD, a missing
: kidney, and the facial asymmetry. We
: are considering surgery for this and
: I'm wondering how it progresses as
: the child gets older. Any help would
: be appreciated!
:
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