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Posted by Karen on 12/8/2005, 4:10 pm, in reply to "Re: I found your site by" --Previous Message--
65.189.231.149
Thanks for your reply. I am 43 and have scoliosis and t.o.f a heart problem.
: Karen, I am not an expert but I can
: tell you how they found the VCFS in
: my daughter and how it has shown up
: in her life through today. My
: daughter is 4 1/2 with a mild form
: of VCFS but very classic symptoms.
:
: Immediately after birth she began
: having feeding issues. They called
: her a floppy baby becuase she has
: low muscle tone. she had a heart
: murmer and some valve issues in her
: heart that is not uncommon in VCFS.
:
:
: She has some appearance things like
: small eyes with epicanthal fold on
: the inner eye. She has long tapered
: fingers, a small ribcage and small
: shoulder blades. She also has a
: very high palate and short tongue
: and so she is now having some speech
: delays. She has had very minor
: physical and learning developement
: delays. She seems to flag as
: delayed and then she will suddenly
: catch up. she will again lag with
: new concepts, activities and then
: she will catch up again. She did
: not walk until she was 18 months
: old. They are saying she is right on
: target now for Kindergarten skills
: and we are very happy because when
: they first tested her a year ago-
: she was very delayed.
:
: Hope this helps you and if you have
: any questions, just let me know.
:
:
: Caryn
:
:
: --Previous Message--
: doing a google search on a few of my
: symptoms. What are the connections
: to /symptoms of VCFS?
:
:
:
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